Time spent with family and friends is time well spent.

So the past couple of days have been packed with seeing some friends and family, I am blessed that my parents live around the corner, some might say that’s too close but for 10 or so years we were closer than that, and they were very happy times, we moved and went our separate ways to relocate here around 2 years ago, so around the corner actually feels like miles away! My brother and his wife live in our town too so it’s lovely for my children knowing they can see them regularly.

Yesterday began with a quick trip to the nail salon for some Christmas nails, now this and my shoe habit I seem unable to give up, I wish I could stop being so vain, BUT : Depending who you ask, they’re either works of art, an absolute necessity, tacky nonsense, or a special-occasion treat. To me, they’re miracles, I feel more confident with them on,  in the words of Shania Twain – Man I feel like woman! 

Also I like the people who do my nails for me, again people have divided opinions on where you should go, there is a husband and wife Vietnamese couple who do mine, she is always so welcoming,  and offers a cup of tea or coffee to her regulars, I don’t think her English is as good as her husband, and I can quite often natter on to her and I don’t think she has a clue but nonetheless smiles laughs and nods leading me to wonder what I said that was so funny, yesterday though confirmed our language barrier, I sometimes get a photo from the internet and she will happily do the same for me,  so as the norm I showed her my picture and she nodded.

She then said ( well what I thought she said was) Same same and pointed to the picture.

I said yes great, she then said it again, I said yes great, again.

I now realise that what she was saying was SAME SHAPE, how do I know this I bet you wonder? Because I now have the Coffin shape nail, which sadly isn’t my thing, but will teach me to maybe listen harder next time! 

After rocking my Christmas coffins, I met up with one of my lovely friends Lu, we literally haven’t seen each other for weeks, down to illness in her family and various hospital appointments on my part, So it was great to catch up,  share our news, hit Tesco and grab a Costa to go, she literally makes me laugh at most things usually her random messages, sometimes they are so needed, during my last hospital stay I was so blessed to have her and Lucy by my side, usually my husband or my Mum nurse me through my Lumbar Puncture but this time it was the job of poor Lu, as Luce had just left, I will always be grateful for the love and care they gave me that day, anyway enough sentimentality, our reunion was short lived as her daughters Carol service awaited her.

So then onto The FMLY Store, this is the newest shop in our town and I love everything in it and about it.

The paragraph below is taken from the website not my own words, just so you get an insight into one of my favourite shops.


Selfish Mother’s #GoodTees were created with the simple idea that selling clothes shouldn’t just be about profit – they should do good, too!

#GoodTees are more than just items of clothing. The T-shirts and Sweatshirts not only look good and feel very good, but they support GOOD causes. 

From the original MOTHER Tee, which Molly Gunn created back in July 2014 to support Women for Women UK – the #GoodTees brand has grown thanks to brand’s ‘wear and share’ philosophy and supportive crew on social media (thank you!).#GoodTees has donated £218K to charities as of July 2016. Simply by donating every time an item is sold. As of July 2016 we donate £10 per adult item and £5 per child’s item. These donations have been divided between the following charities – which we truly believe in, and are all doing amazing work in different areas: Women for Women UK, Kids Charity, Help Refugees, The Refugee Council, Starlight UK, Mothers to mothers.

I followed Molly Gunn aka Selfish Mother on social media before she too relocated to this town, I admired what she had done and why she was doing it.

So this is where the Idiopathic intercranial Hypertension rears its ugly head, this time it did beat me and there are times when I actually am angry it did as now the store is here up and running, I feel like I am missing out, and here is why.

Whilst flicking through Instagram imagine my excitement when I see that Selfish Mother is recruiting in my home town , I apply, I get an interview (in which I felt I was a nervous sweaty mess!) but get offered THE JOB to which I was beyond excited.

I was having a really good few months, no  awful head pain, I had energy and I thought I was in remission (so why not apply for your dream job) apparently you can do that with this condition go into remission for years or in my case it was short lived. I had bagged myself a job I really wanted, then BAM the last week of August the whole lot came back and when I say back I mean back with a vengeance, the wonky walk where you bounce off people or walls, the vision that feels like you are walking on water, the pain in your head like a vice is crushing it in two, the random speech, the painful right eye (more on that too follow)and lastly the random memory!

I knew then I could not take the job and I felt gutted, part of you feels angry because your not the person you were before and the other part wants to say bugger it just do it, your letting it beat you, but this time I really couldn’t beat it, I have had two hospital stays as I mentioned before the last one was the worst I’ve ever been in the 15 months of having IIH, so I had to write and explain I couldn’t take the job which to me was so demoralising, but something I had to do.

So back to my day of socialising at The FMLY store, I met another fab friend, and we took advantage of the honesty cafe and had a good natter, the highlight though of this visit had to be the vintage photo booth, so with my friend carefully balanced on my knee we set about taking our photos whilst getting in the festive spirit wearing some festive glasses, it could only happen to us that she nearly fell off my knee my hand shot up her bare back to grab her resulting in a shock for both and me missing my last photo, the first attempt didn’t work though as the camera was playing up, so will show you the two that were successful!

You know when times are hard, or you don’t feel your self, look around you at what you do have, I do this a lot my husband, my children, my amazing parents,my family and my beautiful friends, they are my reason for not dwelling on having a chronic illness, sure I may do this from time to time and for sure you will hear me moan, but today I am thankful, thankful for all the joy they bring me.

They are my reason to smile.

Big ❤️️ ASIBTAF